I took Clara to the ortho today because she wasn't walking on her leg again this past weekend. She has a cyst on her right lower leg bones (both of them). At first they thought this was causing her leg to grow more since that leg is about an inch longer than the other one. Today they told me she has a lesion on her left leg growth plate. The ortho told me that that lesion is causing her leg to grow crooked, basically that her growth plate is "sick" (his words, not mine). He said that she would have times where she doesn't want to walk/bear weight. He said that was okay as long as she still moved it. He believes that it isn't bad enough to put her through a biopsy to find out more information. They are watching it and we have to go back every few months.
He checked the literature about her syndrome, and as far as he could see, there wasn't anything that said it was related to her WHS. Dr. Carey had the same sentiment last time I spoke with him. It is a new mystery for Clara and her docs.
I have very mixed feelings about this news. I've accepted the fact that Clara will have many medical issues. I know that she will have new thing come up that we hadn't anticipated. The reason that this one is so hard for me to accept is that she is so close to walking independently. Twice in the last couple of months, she has stopped walking/bearing weight. If things keep getting worse, how is this going to affect her progress? I am trying to think positive. Clara has always been trooper and taken all that has been thrown at her.
So for now we wait to see what is going to happen and pray for the best, what ever that may be.
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